whining and dying

First HDR

A co-worker is dying.

I don’t know which is worse, a death observed, or to pass through that door in an instant—from hale and happy on one side, to whatever is on the other side faster than the click of a light switch.

I’m sure when the time comes for me, I will have nothing to say. Everyone agrees that suffering—and complaining about it endlessley—appeals to me. So I will probably not go quickly. Which means, when the time comes, I may very well have nothing left to say. Too bad.

It may be that those of beauty and few words go quickly and in their youth; if so, one could make a case that the other side were being choosy, preferring the comely and nimble over the whining and atrophied. After all, as the saying goes, ‘only the good die young.’ But maybe this only means that many of us don’t particularly lament the passing of those who remain youthful and attractive, seemingly without end. Dying at old age and without apparent suffering seems to deserve less sympathy than a death after long suffering or short life.

And I don’t know which is better: To depart abruptly, with no sour anticipation. Or to go with plenty of warning—enough time to build a monument to goodbye. Clearly I have chosen the latter, but that was out of fear, believing it postponed the end somehow, not because I thought it nobler. And it may have had nothing to do with the delay of my demise. But, being human, I do like the delusion of control.

Or maybe whining does delay the end…

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luminous awe

Kept my face off the floor, because I didn’t go to work this morning.

Fear seemed the better part of valor then, at about 4:30 AM; fear of another shoulder dislocation, fear of another scene at the work place (there have been other such scenes in the past), and fear just of another scene, period.

I was in a rather pre-seizure state; my organs all gearing up for the event, my bowels getting ready to evacuate (I love that word) and my stomach planning the same; the confusion penetrating the root of my brain; each breath became a thing, like an arm, to fold in front of me in preparation for sleep. It was becoming tedious.

Sleep wouldn’t come. Which is another indication of imminent trouble. I was in the prelude to a seizure, and falling asleep at that point would actually have completed the process. There are a few things staying awake can do, and delay a seizure is one of them.

Seizures in public are, I am told, a rather disruptive event to the general peace and tranquility of a given site. I say, “I am told,” because I am, blessedly, out-of-there as they say.

I have never before experienced such a thorough and pervasive unconsciousness as that which accompanies a seizure. Consciousness, being a fairly nebulous and, in my opinion, misunderstood entity, does not always leave behind an apparently sleeping and/or drooling individual of depleted language skills. When consciousness leaves it often leaves behind a fairly well operating individual. Such is the cerebral cortex that it is able to automate many of our fairly complex activities without much evidence that our activity is not being generated with spontaneous originality.

I assure you, for about a week after each of the two seizures I have had this month, in all activities, I was relying heavily on the horse to get me home.

Yes, I realize that includes this moment now.

Well, whoever said that writing was an activity that required the spontaneously original participation of the writer—or in some of the artifacts I’ve seen, any participation at all from the writer—must have been not a very experienced writer.

Writing is not merely an action of the intellect; not merely the output of a delightfully complex program for generating nearly proper grammar along a nearly consistent theme. Writing is a magic of the light, just like in a photograph. It is possessed of a flavor and a color, and of infinite possible interpretations and apparitions, some of them sensible, but some reaching us beyond our senses, in that untrodden place where magic speaks most profoundly.

luminous
If that ‘untrodden place’ is where I go when I have a seizure, then you’d think I might like to go there. But a seizure brings other consequences as well, and at 4:30 AM this morning, ah, I just didn’t want them brought.

Now, as I said, during such a prelude to a seizure, staying awake can delay it. But one cannot stay awake forever. In the particular situation I was in, I needed to stay awake until I could get a delightful little drug called Ativan on-board in sufficient quantity to repress the badsy seizure activity going on in the part of my brain which does not fall asleep. Well, maybe it does fall asleep on occasion. But it does not fall asleep while it is preparing an assault on the other uninvolved, peace-loving parts of my brain.

So, I took the dose prescribed by my neurologist to, in her words, “abort a seizure.” (I love an unanticipated turn of phrase.) And then I waited. My trip to that place beyond my senses was being aborted.

We diminish our own souls when we judge the drunk, blaming him/her for seeking only the stupor which is apparent to us. I have worked among drunks for many years, but I have so much to learn from them. They scare me so. Because (among other things) they go to that ‘untrodden place,’ the place where the light comes as if from the snow itself. Where all is not just white, but a hundred thousand shades of white, and twinkles with little sparkles, too. Where they can move about freely and not disturb a flake, nor leave a mark. They go to that place and have access to that sensibility.

And it looks to us like insensibility. As it should.

But don’t let it’s disguise fool you. And don’t think only the drunks are there; they are sort of like the tourists of the place. The natives are the mystics and the philosophers, the spiritualists who have transcended religion as much as their means allow. And very rarely, a writer, usually a dead one. They live there, and they look out at us—with great tenderness, it seems to me.

After waiting half and hour I still hadn’t quite got enough Ativan into my blood stream—and hence into my badsy brain cells—to facilitate dozing off safely. It was at about 6:00 AM that I finally concluded that it was safe to shut off the lights, figuratively speaking; this whole time I was laying in the dark in my bed, which is the only safe place to be when one is expecting a possible seizure.

Peace came softly, and you’d think I’d have been covered by those flakes of gentle light. But, no. It was just sleep.

And it is with a certain sadness that I return from my seizing enlightenment. Autopilot is not such a bad place to spend the day when gales of light and winds of winking wonderment sweep ’round to light/lift you and move you to places you’d have never found if you were at the controls.

I know—I think with a ‘knowing’ that comes from that place of snowy light—that I will be at work tomorrow, fit as a fiddle, and ready to deal with another cranky, miserable, misunderstood… saint.

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dying

Two seizures in a month. Dislocated shoulder both times. Cellulitis after the first one, continuing infected. The seizure threshold is dropping. Everything causes seizures now. Medication I used to take years ago without much side effect now causes a seizure within eight hours.

Dying? If only I could be sure. But then I would want access to firearms, which I don’t have. Kidding. I’m fairly sure I’m far too cowardly to do anything decisive (despite encouragement from the peanut gallery).

So, I will try to restart work tomorrow. We shall see how long I stay off the floor. There are some who would seize—no pun intended—the opportunity, regardless the consequences. And I have little else to do. Plus a doctors note saying I can return to work.

Yipee.

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wasted days and wasted nights

It’s bedtime again. Nothing to show for the day. Sat around in sweats alternately elevating the cellulitic elbow, and resuming the in-sling position, which the recently-dislocated shoulder requires. The treatments are mutually counter-productive. So mostly I just ignore them both.

Out of idleness, I decided that I suddenly needed to rename all the image files from my Canon. Now, all of the collected data about my photo archive from all over the world, will be …wrong.

Actually, even though Picasa has sucked lately, it was able to keep up with my changes as I made them, which is because Picasa is cool. It does image management that simply works very well most of the time. Sorry, but it’s useful. I don’t need some program to come and offer to “help” by wasting a day duplicating my entire 12Gb archive of photos to its own folder. For what? So now I have two copies of the same image to keep track of?

And other photo management programs will handle today’s changes well, because they are simple, like gThumb. It doesn’t do much, but what it does do it does quickly and it is done. (How many variations of “do” is in that sentence?) Like a quickie. Not true love, but on a particularly dull day, it can be satisfying.

There you have it. The formula for successful interaction with me. If you are cool (meaning sophisticate and practical) or, if you are simple (which means both hot and dumb), then you have my lips. Where ever you want them. And probably my heart, too. At least briefly.

Do I sound lonely? Or horny? Or bored?

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Utility my ass

The Massachusetts Department of Telecommunications and Energy (which took over from the Department of Public Utilities) should be ashamed of itself.

Verizon public telephone charges $0.70 for a ONE MINUTE local telephone call. Now I have never been anything but cynical of corporate greed, but I kinda hoped the good Commonwealth would—as it has in the past—defend the common weal. This is the state in which the cost of a three minute call was regulated at ten cents, and each additional minute cost five cents. Of course that was before hundreds of millions were to be made selling cellphone contracts, cellphones, and digital bandwidth.

One, perhaps a naive one, might surmise that with all that added value, the loss which the phone company has historically absorbed in order to provide a service defined as necessary by statute, would become a less onerous public service for them to tolerate. And that was true.

Unless you look at it the way the phone company did. If payphones were plentiful and cheap, then the phone companies would have to work harder to sell the new services to us (cellphone contracts, cellphones, and digital bandwidth). They would have to make them so useful, and the cell networks so efficient that almost every dime-bearing payphone-user would prefer one.

Nah! It was much easier to just eliminate public payphones. With public payphones vanishing faster than snowmen in Spring, then the selling of cells would be easy, and they wouldn’t need to be particularly cheap, either. Furthermore, such a climate enfeebles the demand that a Public utility—like the cellular network—be regulated as a single, robust and dependable network. And as if it were not bad enough having a mishmash of networks each variously disinterested in the public good, lets further prevent the several cell networks, each with spotty coverage, from inter-operating transparently to eliminate dead spots.

Such a policy does two things: it increases profits, and as an uncared-about side effect, it decreases dependability.

Of course. It is the people who make the money who dictate now, not the people charged with preserving the commonweal. Most of them have left public service, anyway.

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Philip Glass

Do all these Philip Glass movie sound tracks sound the same? The Hours, Kundun, and Koyaanisqatsi.

I just watched Kundun, and I kept expecting to see Virginia Woolf appear. I felt the same way when I listened to parts of the soundtrack from the Qatsi trilogy.

Is it enough just to be famous, to be allowed to rework a tired old tune and call it new, or is there some sensibility I am missing here? Maybe Philip deserves renown for something, but it certainly is not for duplicating the inspiration he had for whichever of those films came first.

Or maybe none of these are the original inspiration, maybe all of these (and perhaps even more) are variations of some preceding theme.

I loved the soundtrack for The Hours. I guess that means I liked the soundtracks for Kundun and Koyaanisqatsi, too.

I’m in a bad mood. Maybe it’s syphilitic encephalitis that’s making me cranky. It’s always more fun to get than keep.

Ta.

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eleventh

Massachusetts State Police Helicopter

This is dsc00011.jpg, the eleventh photo I took with my then-brandie-new camera, the Sony DSC-F717, in February of 2003. Yikes! Such a long time ago.

That is still a camera as yet unreplaced. True, I have moved on to a more expensive one… actually, the newer one is no more expensive than the Sony was. But in the ever-avalanching price structure of new gadgets, a $700 camera in 2003 is not really comparable to a $700 camera in 2007.

Only this one is. Even as I am distracted by my new Canon 350D digital SLR, I remember my Sony. I had mastered it, which is more than I can say for my skills with my Canon one year on. I see shots I might have taken with it, and know exactly how I would do it, I know in my mind how to adjust the settings, which controls to touch, how to hold the camera, what to look for on the top and the back and through the viewfinder.

I haven’t yet returned to it for anything. I am remaining intesely centered on the Canon, until I learn play it like a musical instrument, until I can carry a tune on it. But I look forward to the day when I can relax, and just pick up the old familiar Sony for a day of shooting without any of the pressure to learn, without being careful with expensive lenses, cases, and lots of stuff–but with all of the ease of an old friend.

Before the accidental ones, and the ones just taken for the pleasure of pushing the shutter button the first few times, that eleventh photo was the real first one. It was a joy…

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Of bike rides, and bad jobs

Been wasting my life playing around at flickr. Between that and watching old documentaries that I download, I manage to stay up all night on my nights off, sleeping completely through my days off.

But I have to be at work tomorrow at 8:00 AM. It is now 2:00 AM.

I have six hours left of 2 days off. During this time I haven’t bought milk which I have needed–I’m putting old eggnog in my coffee. I haven’t bought bread, which I have also been out of. I haven’t written the letter of reference which my friend needs me to send to her potential college by February 1. This means I have to do it tomorrow night, or Thursday night–or more than likely, on both nights because I am a perfectionist–in order to send it in the mail on Friday.

During both days off, I have not been outside in sunlight at all; in fact I haven’t even been awake during sunlight for more than two hours total during both days off. Now that I think about it, I have avoided all face to face contact with people, and most of any other kind of contact as well. aloner

If, instead of getting up to go to work every day, I were riding my bike on a long journey (which I did once), then I would know what to do and when to do it. The ‘how’ of it I would figure out. I did, once. Actually, much more than once.

Engaged in the journey, I would have no qualms, no internal conflicts about my occupation, as I do now. I would, as I once did, face fears and challenges with aplomb. Now I respond to tedious fears and drudging challenges with sprays of venom in all directions; these days, I harbor a contempt for everything and it oozes from me like paint-stripping jelly onto every encounter I have.

I once knew the joy of every human encounter, every chance meeting on the bike road or the hiking trail. However, I have allowed this job, like a chafing shoe, to build callouses on me which now allow me to remain isolated amid the crowd; by the stagnation of these days, I have grown giant ugly scabs which rebuff those who would approach me without me ever needing to engage them.

I am missing something, and I do not know quite what it is.

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Jail to the Chief

T-shirts on Tim Reed’s site.

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gnome-blog-poster

Testing the Gnome-blog panel applet, It seems a little light on configuration tweakability (which can be a good thing), but is otherwise very solid and stable.

When this post succeeds, it will become my regular tool for posting.

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the moment’s touch

So, I have been thinking about rhythms, lately. Or the lack therof.

I recently finished reading the last year of the oldgreypoet. Problem is, it’s a daily journal, and now that I have caught up, I miss the rapid progress through the seasons and the events; the condensation of a year within a few weeks of reading; I miss getting re-acquainted with the last house, then its sale, then Graham and John’s move to the temporary caravan, then the new purchase, then settling in followed by Christmas, and finally arrival at the present. I loved the sense that all those events were immediately discoverable, that all the days that I had missed were available, though condensed in his writing, and I could drink them all in as fast as I liked, like a quart of eggnog all at one sitting. Rich, and sweet, and yummy.

Now I must settle for a trickle of days.

Over the course of my diaretical gluttony, I was introduced by the old grey poet to a UK television drama which he likes. And it does seem to be wildly popular over there, as judged by the proliferation of copies of it on peer to peer filesharing networks. Needless to say, I have, in less than a week, watched the first twelve episodes, again condensing a much more gradually paced rhythm into a gulping gallop. And again I am left looking for more.

What seems to be missing is a contentment with the rhythm. I seem to want to escape it, to assume a perspective outside of time, appearing to be superior to it, and in denial that I am in fact a subject which it describes.

The screen door slams outside my open window. Clouds blow through the sky, alternately muting the bright sunshine, then revealing their contours against this leafless scenery here below. The air is warm as spring and floats through the house like this were a lazy summer day and not January. I fry up some Genoa salami and eggs and eat them with a buttered, toasted bulkie roll. The moments trickle past, and classical music tiptoes through it all like sunlight through a shining stream.

I think at times that it is life I have feared, the kind of life my friends in recovery from alcoholism have lived; reckless and full, without regard for what others think, and wholly focussed on the sensation, the glory, the intensity and magnificence of each disastrous moment. I sometimes think that would scare me.

But when I finally touch this tender moment that is here nuzzling for my attention always, then I know what scares me. It is not the rowdy noise or the bawdy misbehavior that scares me. It is touch. It makes me cry–to touch this moment. I have chosen not to live loud in its evasion like my friends who drank; that seemed too obvious a deception to me. Instead, I have chosen at times to hurt this puppy-eyed companion in hopes that he might go away, and he does–for a while. But I am hurt all the more, for I cannot deny that in each moment, within the curl of each swirling mote of dust, and in each warm puff of air from the breath of a sunny day, within every single moment is love. It is as simple as that. Though I have always thought I was too far away, I guess I actually have always been too close to it, too close to the cliff edge, too close to the overwhelming terrifying magnificence, and that is the reason I hide so much.

It is through the touch of moments that I will be led to the hidden terror, a terror which I know is there because I left it there. And so I will visit these moments in a sparing way, like the lips of pilgrims once touched the Pieta before she had to be locked behind glass. I wonder if there are not many more besides me who touch this rarely; lovers who married because they once touched like this, who then spend their entire marriages waiting to touch like that again. Sculptors who wear their fingers to the bleeding bone persuing through stone that touch they once felt there, and seek to rediscover. Whole nations who collectively remember a trembling that once resounded through the foundations of their soul, from a moment when truths were held to be self-evident, who all still wait to touch that once again.

Perhaps I am not alone in this fear to touch the moment. And maybe I will go back two years, instead of just one, and read all that I have missed of the old grey poet’s days, until I have read them all, reaching finally up to this moment now. Again.

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BloGtk

Trying out BloGtk, a blogging applet for Gnu/Linux. I like the ‘Blo’ part. 😉

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a little less than an hour

I have been trying–albeit not very hard–to return here to write daily. The anxiety within me over this issue has not matched my drowsy, lethargic outward appearance, though. I sleep through the days.

Everybody says to me, “Don’t you just want to hibernate?” This brings me to prayer. Well, not directly, but let me try to explain.

Why does everybody think I am interested in how related their experiences are with mine? It seems universal that people have an overwhelming need to spontaneously share with me things they find similar between them and me. I find–and I am rather surprized at this–that I sincerely do not care. Not just that, but I am annoyed by their presupposition that I might care.

It is true, I do want to sleep most of the time, and I go to bed at about 6:00 AM on my days off instead of getting up at 6:00 AM on workdays; it’s a neat little trick to totally invert one’s schedule overnight. Rather like being bodily flipped about in the arms of some massive gymnast… (Now there’s a happy thought, but nothing to do with what I am trying to talk about, apart from the flipping analogy.)

But the fact that I want to sleep all the time does not equate with me having interest in the fact the you too want to sleep all the time. However, my definition of prayer–from practice, not theory–and I am being decidedly anti-eccliastical here, comes from a profound consciousness of the other. Indeed it is little more than that awareness coupled with a genereous intention to be of help to the other. In the past my prayers have been populated with “Oh, Lord”s and “dear Jesus”s, but I find those names (and conventional religion in general), to serve more as stones in the realm of spirit-wind; if anything they are anchors to the massive kites I use to power my intentions.

In fact, the most difficult time I have had with prayer is inserting ‘me’ where ‘God’ would be. Instead, I insert another person’s name, i.e.: Jesus, or Lord. I think God is us, not some rare and almost always absent other. This is one of the greatest injuries caused by conventional religion, advancing the concept of God as seperate from people, requiring people to be tied (religio) to it.

I said to a friend last night, “I think I should go around burning down Catholic Churches…”

“Yeah, that’s a good idea, no one would notice that,” he said. He must have been thinking that I would not want to be noticed.

Despite this, I went on, “I think the Church is responsible for my sexual repression.”

At this he gasped, “You call that repressed?” I can tend to be rather a slut, some would even say heroically promiscuous.

“Yeah, I know. My sexuality has emerged, but it has emerged warped and deformed, rather like the toes of a geisha.”

—-

In the kind of prayer that I am trying to describe, everything is OK. All injury is accepted with appropriate agony, but without judgement. The giesha’s steps may be tiny, but only those who choose despair walk not at all. And my sexuality may be deformed and of unnatural proportion, but only if I despair will I need to sleep all the time, avoiding all non-sexual social contact.

All that in little less than an hour. I should have a column.

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Darkening

The light is going, night soon. And it’s only mid-afternoon.

Used to be that (using satellite images) I watched the progress of the the edge of night as it crossed the earth daily, and as it shifted seasonally from the northern hemisphere to the southern. I would relish the regret of watching it move south away from me, and anticipate with great anxiety its return. Full-disk image of the earth from a moment in the past.

I have never been a summer boy. Perhaps, before my memory began to save everything, I might have had blond hair that glistened in the sunlight. I have never tanned very well, though I do remember once long ago getting a nice reddish color—not a burn—from being in the sun for a week riding my bicycle to Cape Cod. And as everyone who ages knows, I too once sported beautiful youth as a garment which I wore without appreciation or gratitude, which is as it should be worn when one is young.

Summer is a time of discontent for me. Of attraction to forbidden fruits (no pun intended). I have some idea why some religions require burkas—only in my world, it would be the young men wearing them.

Beautiful young men; I remember one in Falmouth, working on a boat. I was yonger than he, but only slightly so. I was visiting there one summer with my parents almost 40 years ago. And he still haunts me.

He was a bit annoyed by what must have been my obvious interest in him. And that made us different. I was never cognizant of what joy there may be in life, and hence not aware of many obvious things, like the fact that my staring would be noticed. I observed life. I was not a participant in life, but a peeping tom. I imagined in awe what his life was like, as he clambered about his tasks ten feet above us on the deck of that substantial yacht. It never occurred to me that I too had a life, that I could be me just like he could be him.

I never wanted to be me.

And so I still remember the curly blonde-haired boy on the boat, 40 years on. And I dread them every summer. And I dread the succulently gorgeous sunsets late in the evening, and the bright shining joy of the days, and the energy and vitality that seems to seep out of every dormant thing. quenching the winter’s dry spongy substance, and dripping all over the place in extravagant abundance. It scares me. More than that, it hurts.

I also remember, from forty-plus years ago, the neighbor who died of cancer, which began in his jaw; they removed most of his lower jaw, and all he could eat—or drink, rather—were frappes from the local drug store soda fountain. I loved frappes, and I failed to imagine what not being able to chew a piece of roast beef must be like. Now I know, sort of. Summer comes, and all around me the meat falls from the bone, but I have no jaw.

So I like the winter, when there are more people depressed (and I don’t feel so alone); or maybe its just that in winter I am depressed (and I don’t feel so …much); and luscious beauty is more difficult to discern beneath the warming layers, and the streets in the resorts are all quiet.

There is peace in lack of opportunity.

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Resuming

Hi.

So much for writing every day. There are more days, however.

To recap, I did say everything from my last entry to the medicine man, and he made some unintelligent sounds, like “I could take those meds and they wouldn’t hurt me,” right before saying “Well, I wouldn’t take them because of the toxicity.”

Hmm.

That was the HIV doctor. After my visit with him, I told my regular doctor (whom I hardly ever see) that I had decided to stay on the drugs. “Better living through chemicals,” I told him. He grimaced wryly. Then he said, “You have emphysema.” I had gone to see him because I had been having trouble ‘catching my breath’ so to speak. Actually it felt as if my lungs had gone away to the islands and left me here alone with lots of air which I could move in and out, in and out voluminously, but to no avail. Damn lungs.

So now, in addition to obscenely expensive HIV meds, my health plan can pay for one of those cool tiny aerosol cans with ozone killing stuff in it which I spray onto the infinitely sensitive tissue of my lungs (which apparently have become a little less than infinitely sensitive, one might even say a tad leathery).

Spray, spray, spray.

I also told my regular doc that I would appreciate it if he could get a pharmaceutical company rep to come to my house. He suspected the reason before he asked, but he was being polite; “Why?” he asked. “Because they’re all so damn cute.” “I knew it!” he said. Then he laughed out loud.

I like that.

Also, I have been updating my links (they should be over on the left, unless you are reading this a hundred years from now, in which case they probably do not exist any more). And I have been updating myself. I have been re-reading one of the sites I used to visit daily—way back when I wrote daily. I’ve covered most of the last two house moves that John (the oldgreypoet) has made since I stopped reading, and I am halfway through re-reading the entire last year of his journal.

I do life like I do laundry—I wait for it to accumulate unattended, then I try to catch up all at once.

I thought I would get up to date with the Journal of a Writing Man, then resume this one. But something moved me to put off no longer.

While checking the old links I was restoring (over on the left there, unless… oh, nevermind) I happened to visit the one archive page that contains exliontamer’s first reference to me. Flattery will get you a long way with me, and I was very moved by his sentiment (which, significantly, I had completely forgotten. Flattery; though I love it, I am very uncomfortable with it). But what he was referring to was probably the best hundred words I ever wrote. If I do say so myself.

And so, I have resumed the silly meds (which might possibly be better than nothing). I have resumed reading John, the Old Grey Poet, and in addition to him, I have resumed reading a few of my old friends who I lost along the way (on the left, unless…).

And I have resumed writing. See you tomorrow.

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